Friedreich’s Ataxia
Rehabilitation Management Review (RMR)

The Friedreich’s Ataxia – Rehabilitation Management Review (RMR) published by ‘Regeneration’ provides a unique, well referenced source of information to all Health and Social Care professionals involved in rehabilitation who are working with people and families affected by Friedreich’s Ataxia. We also hope that the ‘RMR’ will be of interest to people and families, keeping readers updated with the very latest news on all matters relating to rehabilitation management in Friedreich’s ataxia including news on research developments.

The ‘RMR’ is seeking to do more than simply inform on current practice. It is intended that the ‘RMR’ will act as a central focal point for rehabilitation management and care in Friedreich’s ataxia (FRDA), through the publication of clinical reviews, peer-reviewed articles from a range of disciplines, case studies, as well as publishing results of research studies, and reports and open correspondence from care professionals and people and families affected by FRDA. The RMR will also focus directly on:-

•  Promoting the field of rehabilitation management in FRDA.
•  Creating an awareness of the multidisciplinary and multi-agency issues involved in FRDA management, and of the impact that FRDA can have on people’s lives.
•  Providing a forum to pool and discuss new ideas and information relating to all aspects of rehabilitation management.
•  Promoting research into FRDA rehabilitation management and creating a climate whereby, researchers, care professionals and students have an opportunity and a platform to expose their work and the results of their studies.
•  Encouraging communication and collaboration and the sharing of ideas between care professionals, people and families and support organisations.
•  Providing an accessible link between members of the care professions, people and families affected by FRDA , carers and Regeneration.
•  Creating a framework that encourages equal opportunities for patients, families, carers, support organisations and care professionals to contribute and influence the development of appropriate FRDA management as well as the delivery of care and support services.

The principle mission of the ‘RMR’ is to advance knowledge of Friedreich’s Ataxia and of all the issues relating to the rehabilitation management of the disorder. Above all, the ‘Friedreich’s Ataxia – RMR’ will focus always on the interests of people and families affected by FRDA and will strive continuously to help develop and improve rehabilitation care and services.

The Friedreich’s Ataxia – Rehabilitation Management Review welcomes your contributions and ideas for articles to be published. The ‘RMR’ can only grow and develop with your help. We welcome letters, articles and other contributions relating to all aspects of rehabilitation management and care in FRDA.
The ‘RMR’ encourages submissions from all those professionals involved in rehabilitation care including, neurologists, rehabilitation physicians, GPs, other clinical specialists with expertise or an interest in FRDA, physiotherapists, occupational therapists, speech and language therapists, podiatrists, nurses, orthotists, dieticians, counsellors, social care professionals, complimentary therapists, students and researchers. The ‘RMR’ also hopes to attract contributions from carers, people and families affected by FRDA and patient support organisations
Authors wishing to submit an article or other contribution for publication – please first contact Regeneration (publishers) to discuss your idea or article.

Friedreich’s Ataxia Rehabilitation Management Review (RMR) Available Direct From ‘REGENERATION’ (Publishers) Telephone: 01458 252296 E-Mail: office@regenataxia.org.uk ________________________________________________________________ Friedreich’ Ataxia Rehabilitation Management Review (RMR) Friedreich’s Ataxia RMR 2011: Issue 1 (Introductory issue – 66 pages) In this issue • Friedreich’s Ataxia RMR: ‘Welcome’ • Regeneration: ‘Who we are’ • Friedreich’s Ataxia RMR: ‘Why the need’ • Friedreich’s Ataxia RMR: ‘The principle aims’ • Nicolaus Friedreich: ‘Historical background of Friedreich’s Ataxia and the pioneer work of Nicolaus Friedreich’. • Friedreich’s Ataxia: ‘An in-depth overview’. • Friedreich’s Ataxia: ‘Rehabilitation management and care. A discussion highlighting ‘options’ for the provision of long term care and management’. • Measuring Friedreich’s Ataxia: ‘Clinical rating scales – Performance measures – Patient reported outcome measures’. • Friedreich’s Ataxia: ‘Treatment strategies – an overview of current research’. • What you will find in forthcoming issues of the Friedreich’s Ataxia RMR. • Regeneration – Friedreich’s Ataxia research: ‘Areas of research that we have supported’. • Thank you to our sponsors- of this first issue (introductory issue) of the RMR.